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Research Overview

Over $650,000 committed. 11 active studies. One goal: treatments and a cure for CASK gene disorders.

Project CASK was built on a simple conviction: that parents who refused to wait could change the course of science. Since our founding, we have committed over $650,000 across 11 active studies. Funding gene therapy, biorepository development, iPSC cell line research, small molecule treatments, natural history studies, and more. Every dollar is guided by our global Scientific Advisory Board and coordinated through the Global CASK Therapeutic Roadmap.

$650,000+

committed to CASK research

11

active studies

54

countries in our community

How We Fund Science

Project CASK funds research through a rigorous, SAB-reviewed grants process. Every application is evaluated by independent scientific experts before any dollar is committed. Our two-pronged grant strategy — supporting both foundational science and translational research — ensures we are building knowledge and moving toward clinical application at the same time.

Our Scientific Advisory Board includes leading researchers in neuroscience, gene therapy, rare disease drug development, and clinical medicine. They guide every investment decision, ensuring that Project CASK funds the science most likely to reach our children.

Funded Research

Our full grant portfolio — every study we fund, every researcher we partner with, and the science they are building toward treatments and a cure.

→ View funded research

Research Infrastructure

The biological foundation behind the science — our biorepository and iPSC cell line collection through COMBINEDBrain at Van Andel Institute, open-access to researchers worldwide.

→ Explore research infrastructure

Roadmap to a Cure

The Global CASK Therapeutic Roadmap coordinates every research investment across the PC network toward a single integrated strategy — guided by our SAB, updated annually.

→ See the roadmap

Community Research Assets

 

The ways our CASK families power the science — the patient registry, natural history study, biorepository participation, and more. Every family can contribute.

→ Get involved in research

What We Are Funding

CASK gene disorders are complex. No single therapeutic approach will reach every child. That is why Project CASK funds across multiple therapeutic avenues simultaneously — building a diverse research portfolio that maximizes the chances of a breakthrough reaching patients.

A Global Commitment to the Same Science

Project CASK's research mission extends around the world. Through the PC Global Network, affiliated CASK organizations share our Scientific Advisory Board and our Global CASK Therapeutic Roadmap. Every dollar raised across the network supports the same scientific priorities — moving us all closer to treatments and a cure for CASK gene disorders.

Learn more about the PC Global Network →

Every Dollar Has a Direction.

Project CASK does not fund science in isolation. Every grant, every study, every research partnership is coordinated through the Global CASK Therapeutic Roadmap — a living strategy guided by our Scientific Advisory Board and updated annually as the science evolves.

 

When you give to Project CASK, you are not donating into a general fund. You are investing in a specific, accountable, expert-guided research program — one built by parents who refused to wait, and sustained by a community that refuses to stop.

 

Support the research →  projectcask.org/give

See the Roadmap

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