Jan and Dan Duncan Neurological Research Institute, on the campus of Texas Children's Hospital
Roar 2026: The CASK Conference
November 10 - 12
Conference location:
Jan and Dan Duncan Neurological Research Institute
Texas Children's Hospital
1250 Moursund St, Houston, Texas 77030
Hotel location:
Hilton Houston Plaza/Medical Center
*Before booking your stay, please see our Important Details section below for additional information
Texas Children's Hospital NRI Auditorium
Hilton Houston Plaza Courtyard
You’re invited to the inaugural Roar 2026: The CASK Conference! We’re bringing together individuals with CASK gene disorders, their families, researchers, and healthcare professionals to discuss the latest advancements, research, and community support.
All guests are invited to the welcome reception on Tuesday evening at the newly renovated Hilton Houston Plaza/Medical Center hotel. Then you’ll experience two full days of conference sessions at the spectacular Jan and Dan Duncan Neurological Research Institute (NRI) - located just a half mile from the hotel - with lunches provided and plenty of opportunities to interact with each other. Dinner celebrations (and even a dance party) will follow on Wednesday and Thursday evenings at the hotel. What a great opportunity to be surrounded by those that care the most about our children - CASK families and the scientists working to find a cure!
We are happy to offer Camp Roar!, licensed care for our loved-ones of all ages that are affected by CASK, as well as their siblings ages 17 and under. When registering, be sure to buy your child a ticket to this fun, theme-based event, tailored just for them, and held on-site at the NRI during the conference sessions. A Camp Roar! information packet for each camper will be provided closer to the conference along with registration forms for you to fill out and return.
Event At A Glance
Tuesday 10 November
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Hotel and ROAR 2026: The CASK Conference check-in
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Scientific Advisory Board meeting - private
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Welcome Reception for the entire CASK community at the hotel
Wednesday 11 November
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The CASK Conference kicks off with Science Day at the NRI!
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Expert presentations on the clinical landscape and treatment pipeline, as well as Q&A sessions and panels
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Camp ROAR! for the children and CASK adults
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COMBINEDBrain bio-sample collection for families
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Lunch for all attendees
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Conference Celebration and Awards Dinner at the hotel
Thursday 12 November
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Family Day conference sessions at the NRI!
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Special guest keynote speaker
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Presentations from parents, caregivers and other experts in our community including panels and interaction opportunities
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Camp ROAR! continues
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Lunch for all attendees
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Dinner and Dance Party at the hotel
Important Details
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Early Bird Pricing ends on September 30, 2026 at 11:59pm PST.
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Registration closes on October 10, 2026 at 11:59pm PST.
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A conference ticket is required for each Camp Roar! registration. The conference ticket covers your child's lunches, dinners, snacks, a t-shirt, and a swag bag. Camp Roar! childcare is billed separately; Project CASK is covering 75% of the cost, with the remaining balance due from families at registration.
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We understand hotel, childcare and travel can be a financial burden. To help assist with financial barriers, we have compiled a list of potential resources for assistance with travel expenses to the CASK Conference. Additionally, we are offering a fundraising/sponsorship incentive to help cover ticket costs for CASK families.
Booking your stay at the Hilton
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Guests must book their hotel reservations directly through our link in order to receive the special rate.
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All hotel room reservations include breakfast buffets for two adults, per night.
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Self-parking is available at the hotel at $20/night.
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If you would like to request a crib be placed in the room, or are in need of a microwave in the room, please add those requests in the Special Requests/Comments section of the hotel booking form. These items are subject to availability.
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Plan to stay through the evening of November 12 — Family Day closes with a dinner and dance party, and three nights at the conference hotel will ensure you don't miss a thing!
Texas Children's Hospital, Jan and Dan Duncan NRI
Conference Attendance Terms & Conditions
Refund and Cancellation Policy Due to the amount of pre-paid expenses, we cannot offer ticket refunds. However, if your plans change and you are no longer able to attend after you have registered, please notify us as soon as possible. This will help us manage our resources in the most resourceful way.
Terms and Conditions Your personal data will be collected to manage your registration and participation in connection with the conference and will be shared with Project CASK and it's affiliates, and with vendors who are coordinating the logistics for the conference. Your data will not be sold to any third parties.
Audio/Visual Waiver By registering for the Roar 2026 CASK Conference, all participants, including speakers and attendees, agree to: (a) be photographed, filmed, recorded, or videotaped by a Project CASK representative and other business partners working with Project CASK. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a Project CASK representative and other business partners working with Project CASK and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for PR or marketing purposes, such as brochures, fundraising, annual reports, media advertising or articles, websites, social networking sites and other print and digital communications, or any other ways that might contribute to the mission of Project CASK, without payment and any other consideration. This authorization extends to all languages, media, formats and markets now known or hereafter devised. This authorization shall continue indefinitely, unless participant or attendee otherwise revokes said authorization in writing. Participant or attendee understands and agrees that these materials shall become the property of Project CASK and will not be returned. Participant or attendee hereby holds harmless, and releases Project CASK from all liability, petitions, and causes of action which participant or attendee, their heirs, representative, executors, administrators, or any other persons may make while acting on participant or attendee’s behalf or on behalf of their estate.
Liability Waiver Attendees, for themselves, their family, successors, and assigns do forever release, waive, discharge, and covenant not to sue Project CASK, its board of directors, board members, officers, agents, servants, affiliates, employees, successors, and assigns (collectively the “Released Parties”) from any and all liability, claims, demands, actions, and causes of action whatsoever, directly or indirectly arising out of or related to any loss, damage, or injury, including death, that may be sustained by me related to my attendance at the Roar 2026 CASK Conference. Attendees agree to indemnify, defend, and hold harmless the Released Parties from and against any and all costs, expenses, damages, claims, lawsuits, judgments, losses, and/or liabilities (including attorney fees) arising either directly or indirectly from or related to any and all claims made by or against any of the Released Parties due to bodily injury, death, loss of use, monetary loss, or any other injury from or related to their attendance at Roar 2026: The CASK Conference.
Code of Conduct We value the participation of each community member and endeavor to deliver an enjoyable and fulfilling experience. Conference participants are expected to conduct themselves with integrity, courtesy, and respect for others and maintain the highest level of professionalism at all conference programs and events. All attendees, speakers, organizers, volunteers, vendors, and staff at the Conference are required to observe the following Code of Conduct: Project CASK is dedicated to providing a harassment-free conference experience for everyone, regardless of gender, sexual orientation, disability, physical appearance, body size, race, or religion. We do not tolerate harassment of conference participants in any form. All communication should be appropriate for a professional audience, including people of diverse backgrounds and cultures. Sexual language and imagery are not suitable for the Conference. Be kind to others. Do not insult or defame participants. Harassment in any form, such as sexist, racist, or exclusionary jokes, is not condoned at Project CASK events. Participants violating these rules may be asked to leave the Conference at the sole discretion of Project CASK. All attendees must follow Conference protocols while participating in Conference events and activities. Failure to follow all protocols in effect and required by Project CASK, the venue provider, and governing authorities during the Conference may result in registration cancellation without refund.