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The unselfish effort to bring cheer to others

will be the beginning of a happier life for ourselves.

-Helen Keller

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Helping Hands


Project CASK is a parent-led collaborative organization working urgently to improve the lives of people affected by CASK gene disorders. We welcome volunteers from within the CASK community and beyond to help drive forward treatments and a cure!


From leadership positions to supporting roles, there are exciting projects underway and opportunities across the organization in research, communications, business development, fundraising, finance, legal and more!


Drop us a line at and we’ll work together to find a good fit!

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