top of page
  • LinkedIn
  • Instagram
  • Facebook
  • TikTok
  • Twitter
  • Spotify
  • Youtube

Fundraise for Project CASK

Thank you for your interest in fundraising for our children with Project CASK! Through fundraising, you can help advance cutting-edge science to support people affected by CASK gene disorders globally. There are so many ways you can participate and HAVE FUN while helping to change lives! 

make a splash for cask fundraiser.png

This August, we invite all CASK families and friends to raise awareness about CASK and critical funds to develop treatments by leveraging something our kids adore…water!

Start by creating your personalized fundraising page, then…

Only have a few minutes (2).png

Or come up with your own way to Make a Splash!

START HERE – Create your personalized fundraising page Create your own personalized donation page for your loved one with your own unique link! See the impact you are making by tracking donations in real time. Feel the love and see the ROAR as donors honor your Liocorn! STEP 1: Go to https://givebutter.com/SplashForCASK/join STEP 2: Sign up using your name, and you or your loved one's photo STEP 3: Set your fundraising goal and personalize your story (you can edit this later) STEP 4: Use the “Share & Manage” button to edit your profile and choose a unique Display Name/Team Name STEP 5: Customize your URL to your Display Name/Team Name STEP 6: Share your unique link far and wide, throughout the month of August!

SPLASH FAQS

When should I hold my SPLASH event?

Anytime during the month of August!

 

How can I raise money for my SPLASH event?

There are so many creative ways to raise funds! Some ideas include:

  • charge a participant fee/suggest a donation (e.g. $10 - $40 per person)

  • organize a 50/50 raffle, or raffle donated goods from local shops

  • hold a contest or tournament with a separate entry fee

  • add a bake sale, or create a specialty drink with a suggested donation 

I live outside the US, can I participate?

Yes! All donations are processed in USD, and international donors should be aware that their bank or financial institution may apply additional fees for currency exchange into USD. 

 

Other tips?

Remember to share your story and your “why” during the event. Also, when thanking your donors after the event, share a bit about how their contribution is making a difference for your loved one(s) with CASK!

Hosting an event to benefit Project CASK

Fired up to fundraise for Project CASK to help advance cutting-edge science for treatments and a cure for CASK? Amazing! Thank you! Send us an email at hello@projectcask.org to get started as well as to obtain our fundraising tool kit.

 

WHAT IS A THIRD-PARTY FUNDRAISING EVENT?

A third-party fundraising event is conducted by an individual, group or organization in the community with proceeds to benefit Project CASK.

 

HOW CAN Project CASK HELP ME?

Project CASK can:

  • Help with ideas and share tips on fundraisers and events.

  • Provide a letter of authorization to validate the authenticity of the event and its organizers.

  • Provide and approve the use of our logo, and outline the criteria for its use. 

  • Share informational materials on CASK and Project CASK

  • Provide a tax deductible platform to raise funds for Project CASK

 

We are here to support you. However, there are some services we cannot provide:

  • Our tax exemption number

  • Insurance or liability coverage

  • Mailing list of donors and/or vendors

  • Funding or reimbursement of your expenses

  • Guaranteed attendance of Project CASK representatives

 

Ready to get started?

Send an email to hello@projectcask.org with a short description of what you would like to do. Proposals will be approved within 10 business days of receipt.

FREQUENTLY ASKED QUESTIONS DO I NEED TO CREATE A 501(C)(3) (NON-PROFIT) ORGANIZATION TO HOST A FUNDRAISER FOR Project CASK? No, anyone can host a fundraiser for Project CASK with our approval. We can provide an authorization letter confirming your intent to raise funds for Project CASK. CAN SOMEONE FROM PROJECT CASK HELP ME PLAN MY EVENT, AND ATTEND AND/OR SPEAK AT MY EVENT? We are happy to provide guidance for your event, but we do not have the staff to handle the organizational and administrative tasks associated with third-party events.  CAN I USE PROJECT CASK’s NAME AND LOGO? Once your fundraiser is approved, we will provide you with Project CASK’s logo for your marketing materials. We must review everything with our name and logo before it’s printed or distributed. This includes the use of the Project CASK’s logo on your website or your company’s website. CAN I USE Project CASK’s TAX EXEMPTION NUMBER? Because Project CASK is not hosting your event, it is considered a third-party event. For this reason, you will not be able to use Project CASK’s IRS 501(c)(3) charitable classification, federal tax ID number, or tax-exempt certificate. CAN Project CASK PROVIDE INSURANCE FOR MY EVENT? Because Project CASK is the beneficiary and has no direct involvement with running the fundraiser, we cannot provide insurance for third-party events. The event organizer is responsible for obtaining insurance for the event. CAN Project CASK HELP ME GET A PERMIT FOR MY EVENT? The organization and execution of the event are the responsibility of the event organizer. The event organizer must obtain any necessary permits or licenses. WILL EACH OF MY DONORS GET A RECEIPT? If you use the Project CASK Give Butter platform for your event, donors who contribute directly through the platform will receive a charitable tax receipt. Project CASK cannot issue charitable tax receipts for donors or sponsors who make payments directly to your third-party event. If your donor wants a receipt, please be sure the check is made payable directly to Project CASK and leave the check in its original form before sending it to the Foundation. Please note that there are complex regulations around the distribution of charitable tax receipts. This includes donations of money, in-kind items and services. Issuing an inappropriate receipt can put our charitable tax status in jeopardy so please do not promise any kind of receipt. For more information about charitable tax receipts, please contact Project CASK. HOW CAN I TRACK EXPENSES FOR MY EVENT? You may wish to open a non-interest-bearing checking account, or benefit account, at a local bank to keep track of the funds and expenses. If you do, please note that the account cannot be opened using Project CASK’s name or financial information.  CAN I PAY MYSELF BACK FOR EXPENSES I’VE INCURRED? We recognize that events incur expenses. However, Project CASK cannot fund or financially support community fundraisers. Organizers are responsible for covering all expenses and cannot be reimbursed by Project CASK.  For these reasons, as you start to collect money, you may want to keep some funds on hand to help pay your expenses. This amount should not exceed 30% of your gross revenue. In your planning process, make sure to develop a budget reflecting the type of event you are having and the costs related to the event.  After the fundraiser is complete, please send us all checks addressed to Project CASK as well as a one lump sum check for proceeds received other ways.

bottom of page