top of page

Project CASK in the news

18 January 2024 - Rare Revolution Magazine

Project CASK, in collaboration with Orphan Disease Center, is seeking proposals to advance research...

9 December 2023 - KSBY/NBC by Katherine Worsham

10-year-old Cayucos girl is one of the few with a CASK gene mutation...

7 December 2023 - CBS Philadelphia by Wakisha Bailey

A local family is looking to raise awareness about CASK, an incredibly rare genetic disorder that slows brain development. Fewer than 300 people around the world have been born with CASK...

19 November 2023 - ABC57 by Danté Stanton

The Stiglitz family of Goshen is looking to raise awareness to CASK, an incredibly rare genetic disorder that affects three-year-old Sophie Stiglitz. Only one in around 300 people are born with CASK, a disability that slows brain development... 

30 November 2023 - Little Black Book 

Project CASK creates one-of-a-kind 'Ultra Rare Collection' with 26 celebrated artists for CASK, an ultra rare gene disorder...

bottom of page